July 27- 29, 2012:Scleroderma Conference in TX

  My Mom, Lian and I attended the National Scleroderma Conference, it was FABULOUS!!!  We stayed at the Gaylord Texan Resort in Grapevine, TX.  What a beautiful place!!! Full of lots of informative speakers and inspirational stories.  We met so many great people (Heather, Cindy, Barbara, Kris and many more), everyone was so positive.  Dr. Furst and His Wife, Elaine Furst, RN were both speakers at the conference.   We left there reassured that we are on the right track, made new friends and gained knowledge to new things on the horizon. 

We also learned that because this disease is not well known, we want to get people informed; including our communities, insurance companies and legislature.  Getting the word out there will only help us in future research, funding and finding a cure for SCLERODERMA.  I have attached a link to the Scleroderma Foundation; please click on it to learn more about this disease and what the Foundation is doing.  The website is getting a new look and will be unveiled in August.

 

Thank you Mom and Lian for all of your continued support. I appreciate the opportunity to have been able to attend this conference together, we had a great time.